I went to MDA clinic in Jackson, MS for the first time this year. We briefly spoke about my experience in New Orleans, and I must have said the word "infuriating" four or five times. They know I'm back in Jackson to stay, and are fine with that.
In a nutshell, my chronic pain was acknowledged, my proximal muscles are continuing to atrophy, and there is nothing they can do to help since pain medications and exercise make me worse instead of better. Orders are to continue seeing my other doctors, take all of my medication, be mindful with my diet, avoid triggers when possible, rest rest rest, and return for documentation in one year.
Renal clinic is November 14th.