Friday, January 29, 2016

20 Things Not To Say Or Do To Someone In A Wheelchair (Article)

20 Things Not To Say Or Do To Someone In A Wheelchair

I don't necessarily agree with all of the responses, but I can relate to some of them and I really can't blame her for being frustrated. I use a walker, I've been in a wheelchair more times than I can recall, and I've experienced much of this. Listen, we get that you don't get it. You're not in a wheelchair and you don't have a clue what it's like to live in someone else's body, especially an individual whose body happens to be permanently broken. But there is so much education out there, and a little self-awareness can go a long way. A nice rule for humanity as a whole is pretty simple: think about what you're saying before it comes out of your mouth. If you're not sure if it will offend, it's best not to say it. If you're tactless and don't care how your words affect others, you deserve a sarcastic response. If you're making an effort to be respectful, it will show, and most likely, the individual will be willing to have a discussion. I am more than happy to talk about my condition, but only if the asker has approached me respectfully and the subject is appropriate. Skepticism, cynicism, and general asshatery is frowned upon with a vengeance, as you can see by the jaded author of this article.

Some of these things are honestly ridiculous, but they really do happen.

Stealing a handicapped parking place? If you don't have a valid permit in your name or the name of your passenger, you don't have the right. There are NO exceptions. And while I'm at it, handicapped parking spaces are NOT! YOUR! SHOPPING! CART! RETURN!!!!!!!!!!!!!!!!!!!!! If my crippled backside can put my shopping cart where it belongs, your lazy backside can do the same.

Speaking to the person accompanying me, about me, instead of addressing me? You're assuming that I'm deaf or dumb, apparently, and you would be wrong. As for grabbing someone's wheelchair and pushing them without permission, it is never ever ever okay. Never. I don't know why anybody would ever think it is acceptable to do such a thing. Don't be stupid. It is violating. And don't even get me started on the disability memes. I'm sure you already know that I find such things humorless and in terrible taste.

This is a big world and there are an awful lot of people with an awful lot of varying abilities and conditions. Be mindful, otherwise you're, well, mindless. No-brainer, right? Pun intended. The bottom line is that these things matter, so on behalf of those who live with disabilities, thank you for your consideration.

Thursday, January 28, 2016

January Medical Update

I saw my new eye doctor on the 26th. He was outstanding, and I intend to keep him forever. My eyes haven't worsened, thankfully. I'm still bat-blind without lenses of course, but I see pretty well with them (about 20/50). My eye muscles are weak, which could be contributing to not seeing 20/20, or I could have permanent damage from the scratched corneas I obtained about 14 years ago. There's really no way to know for sure, I guess. I have a script for Restasis for chronic dry eye, but I have to wait to find out if it's safe to use (steroids are a dangerous no-no with HKPP, but eye drops may not be an issue...we'll see). I picked out new purple glasses, and I will begin a contact lens trial after my current migraine resolves.

Next up is Internal Medicine clinic, which is in February. I'll have bloodwork to look at my BMP and kidney function again, but I don't anticipate any other drama (famous last words, knowing me). I pushed MDA and Renal clinics to May 3rd through 5th, but as it stands right now, I am neither physically nor financially able to go to Jackson. If this changes by May, I'll go. If not, I'll have to cancel until I see improvement in these areas. I don't have a choice.

Winter is very hard on me, and I look forward to warmer, less painful, more functional days. In spite of how difficult 2016 has been so far, I'm counting my blessings.

Monday, January 25, 2016

I'm not dead.

I know I haven't posted in a while, and I apologize. I've had so much going on, including recovering from a really bad HKPP episode in December. I'll elaborate at another time. Just letting you know I'm still here. I hope everyone has a happy and healthy 2016. Talk to you soon.