Tuesday, April 21, 2015

Another short sleep update

My experience with pressurized oxygen is going like this:

Confession: I am known to remove any article on my body in my sleep if it is making me uncomfortable...sock, shirt, whatever (go ahead, laugh. You have my permission). That said, the fact that I keep waking up within two hours with the mask in my hand instead of on my face is not a surprise. It IS a problem, needless to say. I did go to the doctor and have the pressure increased, and I had to reduce the humidity significantly, but I'm not sleeping through the night any better than I was. Dr. H and I are both disappointed, but hoping I'll get used to it over time.

One thing I will also mention is that I had a paralytic episode last night and was having trouble breathing. I put on the cpap and it seemed to help a little. Take that info for what it's worth.

MDA and Renal clinics were rescheduled to June 2nd.

(edit: renal clinic was rescheduled again to June 10th)

(edit: renal clinic was rescheduled yet again to late August)